Fluid Intake and Dehydration

Dehydration and lack of fluids are often a problem with many different illnesses.  Ice chips are great for those that every single drop counts.  +Gatorade  is great for fluid intake.  +Crystal Light is also a great choice that counts as a water.  +Jello also counts as a fluid.  Carbonated and flavored water is great as it feels like drinking a soda, but it is water.  Popsicles and italian ice count as fluids.  Be cautious (if your loved one is not diabetic) to not get too many products with artificial sweeteners, as artificial sweeteners can cause diarrhea if overused.  No matter what mode of fluid you are trying to get down your loved ones, one thing is certain, it can be frustrating.  I can't sugar coat it for you, you will have to be persistent, patient, and sometimes sneaky.  Utilize every opportunity to encourage fluids.  If you have a loved one with neurological illness, they may refuse or say no, but often it is because their processing hasn't kicked in fully.  If you offer fluid and get refusal, try again in 15 to 30 seconds and give a directive.  Asking is often ineffective and confusing.  Rather than saying, "Would you like some water?" Phrase it by using their name and a directive like this: "Mom, take a sip of water."  Their name gets their attention and they do not have to try to process what you want them to do because you told them.  This seems so incredibly simple, but you would be surprised how helpful that little bit of information can help. Another helpful tip is to use a small med cup, such as the one that comes on the top of a cough syrup bottle, to push fluids.  Offering in a small amount is not as overwhelming and every ounce counts. Be aware that dehydration can actually mimic dementia or worsen an existing case of dementia, so the more fluids the better the presence of mind.

More on Cancer Care

It is also important when taking your loved one out for necessary outings to not only carry the bag of important items discussed in the last post, but also to avoid infection.  Most illnesses are spread hand to mouth, so it is important to utilize frequent hand washing, but also to avoid contaminated surfaces.  These would be surfaces such as door handles, water fountain handles, counter tops, and cash.  When you are unable to wash hands, utilize hand sanitizer, but don't use sanitizer as a replacement for hand washing if  you can.  +Lysol Disinfectant Spray now makes a pocket size can that can be carried with you.  Also, be cautious with restaurants, as food born illness is also a concern.

Loved ones and visitors need to use infection control practices when coming to visit as well.  Take off shoes at the door, wash hands, and avoid too much physical contact.  If anyone has a cold or infection, they need to understand that it is best for them to stay home and that it isn't personal.  Cook all food thoroughly and pay attention to food temperatures.  Keep the refrigerator cleaned out of excessive leftovers.

Many people want to know what they can do for you and your family during the difficult times of cancer treatment.  Be honest with them.  They would not ask if they did not want to help.  Often the family caregiver is missing work to take care of the sick one, gas back and forth to the doctor adds up, parking fees in the hospital garage are killer, and the list goes on.  Sometimes the best thing someone can give you is a roll of quarters, a gift certificate to +Walmart , or some +Redbox rentals.  Other times, having someone change your ac filter before you return from the hospital or clean your bathroom is what you really need.  Just be honest with your needs.  If someone can do it they will and if they can't they will tell you.  It isn't shameful to need help and support.

Cancer Care

I apologize for my absence.  I realized after caring for a client with cancer recently, that I have covered a lot of dimentia and neurological care issues, but there has been little coverage on my part regarding cancer care.  In my personal life, I have cared for my son through 3 different chemotherapy treatments, one being a drug trial in which intense documentation was required.  We will begin a new chemo journey on the 27th of this month, as he will begin a new drug trial out of Indianapolis for his tumor treatment.  So, I have professional and family caregiver experience for chemotherapy.

First and foremost, I will address some ideas for nausea, diarrhea, loss of appetite, and the difficulties that you may be facing when this occurs.  During this time, it is important that you not push your loved one beyond what they are capable of.  So, you may need to enlist the help of outside caregivers, either family, friends, or professionally, so that you can get out and do things you need to do without worry about your loved ones needs being met.  When you do have to get out with your loved one, bring a bag with a change of clothes, trash bags for vomiting and soiled clothes, wipes for diarrhea, medications, +Gatorade  or other drink with potassium and electrolyte replacement, saltines, sanitizer, disposable medical gloves, comfort items, and a light blanket.  I know this sounds like a lot, but it is important to just keep such a bag packed and ready to carry any time your loved one is with you.  It will make all the difference for you and your loved one.  You will never regret having it.  When your loved one goes out and the inevitable accident occurs, it will be very hard for him or her and he/she may react with anger and/or shame.  You should do everything in your power to assure him or her that there is nothing to be ashamed of and it is important to validate the anger, even if it is misdirected at you.  Cancer patients have a right to be angry at this thing that is invading their bodies and making them have to fight for their lives and their dignity.  They will feel bad enough that someone is having to help clean them up, so they don't need to feel bad for being mad about it.

It is important to push fluids and foods high in potassium and electrolytes when there is a side effect of vomiting and diarrhea. Gatorade, fortified waters, and other such sports drinks are great for hydration needs.  Sweet potatoes are higher in potassium than bananas, so both of those foods are great!  It is also a good idea to sprinkle cinnamon on either of them (if your loved one likes cinnamon), as it helps with nausea.  Teas are great for helping with hydration and nausea.  Cinnamon, ginger, lemon zest, and mint are all great for nausea.  Ice chips are great for hydration, as are popsicles and jello.